About Me
At the age of 10 I was diagnosed with Gullian Barre. 5 long weeks of hospitalized bed rest & I was told if it returned it would be with a vengence. I had many surgeries, a husband, usually 2 jobs, 2 wonderful children, my grandmother passed, a divorce, a rebound, bought a house and went to tech school that I completed with a 3.67, had another child and finally things were going to slow down. I was run down & not taking care of myself, my diet was all wrong, my exercise was my bycicle. At the age of 37, 4 days after my birthday I woke up & my hips ached. Within 2 weeks I could no longer drive my car. I had been to my doctor. She ruled out lymes disease. My small town doctor told the Specailist do a spinal tap she had Gillian Barre as a child. But no they had to do all these other test first, 1 at a time. So we would set a date for the test & wait. Have the test & again wait for the results. Then send me to another doctor to consult & then set up another test & wait & test & wait & test & wait. Absolutely rediculous. I was eating Tramidol a pain killer every 3 hours, I had over 500 pills by the time I was diagnosed. To this day the thought of Tramidol in my mouth makes my body feel like it did when I was sick & I would rather be dead then take another one of those. But at that time I needed them & they got me through a very tough time. Within 2 months I couldn't walk without the aid of a walker. I had a shower chair & the biggest pair of black sun glasses I could find. I wore them continuously in the house. My eyes were fully dialated around the clock. I couldn't figure out why for the longest time I was having nightmares, then I realized they were visions in the dark, in my bedroom, while I slept. Of the things in my bedroom........ the curtains, pictures, the bedpost. All these things were black shadows I could see as I slept. I was no longer able to use the muscle in my eyelids to close my eyes. My jaw would shake as if I were shivering out of control. I couldn't watch tv, read, get on the computer.I tried one day when the kids were out, I was sitting at my computer & managed to antangle my foot in the phone cord connection & unplug the pc from its dial-up. I had to have that plugged in. I was going to get on the computer today & that is all there was to it! So I got down on the floor on my hands & knees plugged the jack back into the wall & went to get up. The chair has wheels, this is good. Maybe if I do it this way or maybe this way. I did manage to get into the chair after about 10 minutes but it felt like much longer. So now I sit in my chair wanting to cry, there really is something wrong with me. Humiliated and embarrassed, needing to rest. I finally am online & spend less then 15 minutes on the computer & feel like vomiting, I just cant see straight. I couldnt even focus on the isles in the K-mart as my sister pushed me along in my wheelchair, she thought I needed to get out. It took another 30 days before I was diagnosed. My community took care of my family with meals & cleaning, Thanks to Connie who organized everyone! The visits from church members & Pastor Chris. My mother came to stay & take care of what she could. My girlfriend was bringing me things like toothpaste without SLS & Flouride, a liquid mineral & vitamin called Maximal, Anti inflammatory's, everything she could think of. She was so tired of waiting for the doctors to do the right test. She kept telling me, "your toxic, we got to clean you up, here take this & use this, It will help" My other girlfriend figured out the sea salt I had been on didnt have the iodine my thyroid was demanding. Having been on synthroid for 10 years & I had way to many symptoms for 3 specailist doctors to figure out. My other mother ran me to every doctor appointment I had. Funny thing is Doc Ahluwalia told me it was all in my head, it was stress. Go home and rest. So my small town Doc Farrah sent me to another doc, who in turn sent me to Ahluwalia. Ahluwalia sent me to another doctor, who in turn again sent me back to him. I was so exhausted, drugged up & dieing that I didnt have the energy to be pissed off at him like he deserved. Dr. Ahluwalia did the Spinal tap. I went into shock. Everything had to be stopped, cleaned, restarted, not a difficult process but time was but the essence. Bonnie was there for me all the way through. The Guillian Barre showed its ugly face again as Chronic Inflamitory Demylinating Polyneurapathy CIDP. So the following day I am admitted and the treatment of IVIG is started, day 1 not to bad I get a bit of nausea & a headache, but everything seems to go okay. Day 2 another story, my body is already saturated with yesterdays IVIG and it isn't cooperating the same way. I am thowing up constantly because of the pain. I have a migraine the size of the sun, my black sun glasses are not black enough. The nurses are feeding me tylenol 3 with codiene, it goes down & comes right back up, like that was a no brainer. But they want to do it again and again. Each time I am waiting on the doctor to give the okay for another dose of tylenol. We try this 3 times. This is absolutely rediculous & my head is about to explode. Finally Ahluwalia gives the word to administer morphine and I tell you they couldnt do that fast enough either. I remember them messing with the IV so I would have the Immunoglobulin, the saline & the morphine available. Once the Morphine was started I felt it travel up my arm acrossed my chest & down the other arm. I am thinking my head has got to be next. But no it travels down my legs & into my toes, one at a time. Then back up my body to my head. The relief is instantanious upon arrival! Thank God! This process of travel time is only seconds but it felt much longer. I finish out the day with relief. I am so thankful when the treatment is complete. The Morphine IV had been removed, I guess they thought I had enough to last me the rest of the journey. But my body said NO! the migraine was full speed ahead. Doc wasn't very happy when he learned they had taken out the IV. Day 4, is my last day to get the last 3 bottles in and we knew exactly what to do...... start the morphine, wait a few minutes then start the Immunoglobulin. This so day by far had been the easiest day. My body is still saturated. The nausia is with me but I am tolerating the treatment that I dreaded starting as soon as I opened my eyes to a new day. Day 5, now this is the day I have been waiting for since we started. I am still waiting for them to take the IV's out, but no not this time, they are scared of screwing up again. So no one is willing to take this damn thing out & I just want it all to end. But to my amazement, something has changed. The light doesn't hurt my eyes. I Can See! I Can Really See! I can focus, Oh I can't wait to get out of here! Dr. Ahluwalia comes in & releases me, yeah! I get to go home! I want to get as far from this place as I possibly can. I want to eat some real food & the doctor isnt going to release me until I do........ The IV's are removed, I get to eat with my clothes on if I am up to it. I am up to it, where are my clothes! I am helped out of bed. The nurse offers to help & I told her I could do it by myself. I am standing at the end of my bed and my body goes into what I call an involuntary stretch. My hands reach for the sky & I am up on my tip toes. I just stay in this possition until my body releases me to move. It is the most amazing feeling I have ever felt. Almost as good as the morphine and this stretch travels my body the same way. One muscle at a time. I feel strong again. I feel like I am able again. I want to dance I want to cry. I want to tell someone. I am alone and all I can do is smile and say Thank You God! Breakfast is served, I think I was brought a muffin and juice. Not what I had in mind. When Bonnie arrives she asked me if I wanted to go to McDonalds for lunch. So we did! This was my 1st treatment. The next treatment I had was 6 months later. The process was put into 5 days of IVIG instead of 4 and at a much slower drip. I was given just tylenol before we started. I was disappointed, I loved the morphine, it was the favorite part of my stay and I was scared of the pain and the unknown. But it went well. This is the last time I had to stay in the hospital to be given the out patient treatment of Immunoglobulin. I had another treatment 1 year later as an outpatient at my local hospital. I was able to drive myself everyday. I took my own tylenol so I was ready when I got there & the IV was put on my forearm instead of the back of my hand. This allowed me to work & no one knew I had it on! After the 1st treatment I did water therapy for 1 year to get my balance back and it took that whole year for me to be able to ride my bike again. I had given up a lot of my life to this illness. But no longer do I claim it as mine. I am driving school bus in my 4th year & I haven't needed a treatment in 3 1/2 years. The reason I dont need the treatments at this time is because I had to learn how to live differently. I supplement with Vibe a chealated mineral & vitamin, I do Carlson fish oil, I do my whole foods in Greens. I also buy organic, the pesticides were killing me. No toxins in my cosmetics or in my personal body supplies ( I spend less money now, because my products actually do what I need them to do, so I dont have so many of the same old thing) & household cleaners are also toxin and chemical free. I have a water filter that takes out flouride & chlorine. I also quit with the vacinations, I study each one when it is called for, I have been to numberous seminars about vacinations & know how to keep my body as healthy as possible, AHAP! Including Sherri Tenpenny's seminars. My whole family is healthier because I had to learn the hard way. I hope just one person will read this & also see that they can change their life or someone they love, just by choosing to live healthier! I guess if there is any trick to this at all it is doing your homework, sure there are many products on the market that tell you how Great they think they are, but you have to know what to look for. I do believe that there are other product I could always be using, but it's one foot in front of the other. Baby steps in the beganning.
Personal Updates -- Mini Blog
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September 28, 2009
How do I change my email address on my profile page? Also will this keep my newsletters coming or do I have to sign up again?
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06-23-2009
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