Fibromyalgia, Lyrica, and the New York Times

re: Fibromyalgia, Lyrica, and the New York Times

Natandov — Thu, 25 Jun 2009 14:49:42 GMT

re: Fibromyalgia, Lyrica, and the New York Times

tatumstacia74 — Wed, 27 May 2009 00:25:51 GMT

It infuriates me when people claim EFT and other such therapies "cure" disease. If it did, you never truly had the condition in the first place. Now, don't get me wrong, we all need to deal with our issues to live a happy, emotionally balanced life and stress can contribute to poor health. However, stress is NEVER the only source of disease or conditions like fibromyalgia. Supporting such claims only empowers physicians who love to tell patients "it's all in your head" and then refer them to psychologists for treatment. I have a degree in Biological Health Sciences and am now finishing my doctorate in Molecular Biology. I plan on going to medical school following graduation because of my experience with this issue. I suffered for years at the hands of countless doctors from a misdiagnosed endocrine disorder which manifested first as hypothyroidism and crippling chronic fatigue before age 19. By age 26 I had osteoporosis, debilitating insomnia, and fibromyalgia. I was 29 before a very astute NP thought to check my hormones (saliva/urine/blood)...which of course were comparable to a post-menopausal woman in her 70's. With the help of numerous bio-identicals I have improved. I eat a gluten-free diet, using only organic fruits/veggies, with limited amounts of organic grassfed meats and raw cheese. My diet is rich in essential fatty acids and I take care to cook my food on low heat to avoid oxidation or I eat it raw. I avoid soy, plastics, and other sources of xenoestrogens/phytoestrogens or hormonal disruption. I get plenty of exercise including yoga and pray/meditate daily. I avoid as many toxins as possible using only natural toothpaste, cosmetics, cleaners, mineral rich spring water, etc...I grew up in a wonderful family and have a life overflowing with love and support. No emotional or mental stress induced my disease. I truly believe environmental toxins are to blame and the birth control drug Depo-Provera. Be healthy and find a doctor who can help you.

re: Fibromyalgia, Lyrica, and the New York Times

GgisGODSgirl — Thu, 19 Feb 2009 20:07:38 GMT

DEAR PEOPLE SUFFERING WITH FIBROMYALGIA AND OTHER MISDIGANOSED ILLNESSES, PLEASE GO TO WWW.DAMS.COM THAT IS A WEB SITE ABOUT MERCURY PIOSONS, THAT COME FROM DENTAL FILLINGS THAT ARE SILVER. THEY ARE 50% MERCURY, THE REST IS COPPER,TIN, SILVER, AND ZINC..THESE ARE VERY DEADLY POISONS THAT ARE BEING RELEASED INTO YOUR BODY DAILY, AND PROBALY HAVE BEEN CAUSING YOUR PAIN AND ILLNESSES...PLEASE INFORM YOUR SELF- YOU CAN ALSO GOOGLE: DANGERS IN AMALGAM FILLINGS... DONT LET THIS STUFF KILL YOU OR SOMEONE THAT YOU LOVE- THE BIBLE SAYS THAT" MY PEOPLE PARISH BECAUSE OF LACK OF KNOWLEDGE" PLEASE LOOK INTO THESE VERY DEADLY POISONS THAT OUR DENTIST OUR PUTTING INTO OUR MOUTH'S ON A DAILY BASIS. ALSO MERCURY IS THE PRESERVATIVE IN MOST ALL SHOT'S INCLUDING THE SHOT'S THAT WE LET OUR INNOCENT BABIES RECEIVE, AND THEN WONDER WHY THEY HAVE SYMPTOMS OF ADD, ADHD, AUTISM, AND MANY OTHER HARMFUL DISEASES..... PLEASE I BEG OF YOU PROTECT THOSE THAT YOU HOLD SO DEAR TO YOU AND ANYONE ELSE THAT WILL LISTEN....... SINCERELY, GgisGODSgirl

re: Fibromyalgia, Lyrica, and the New York Times

GgisGODSgirl — Thu, 19 Feb 2009 18:49:53 GMT

DEAR FIBROMYALGIA SUFFERS, I KNOW THAT YOUR DIET AND OTHER THINGS MAY CONTRIBUTE TO THE PAINS OF THE FIBROMYALGIA BUT RECENTLY I HAVE FOUND OUT THAT (SILVER AMALGAM FILLINGS IN YOUR MOUTH) CAN ALSO PLAY A VERY REAL ROLE IN YOUR PAIN. THOSE FILLING ARE MADE UP OF (50%MERCURY) A VERY POISONUS GAS THAT IS BEING RELEASED INTO YOUR SYSTEM, THIS STUFF CAN EAT THROUGH ALUMIUM, BUT THERE STILL PUTTING IT INTO OUR MOUTH;S AND OUR CHILDRENS MOUTH'S.... IT'S SIMPLY POISON, PLEASE IF YOU CARE FOR ANYONE AT ALL YOU WILL TELL THEM OF THIS DANGER... THIS CAN CAUSE SEVERAL HEALTH PROBLEMS THAT THE DR.S WILL MISDIGANOSE, ALSO THE SHOTS THAT WE ALLOW OUR BABIES TO RECIEVE THINKING THAT THEY WILL PROTECT THEM CAN ACTUALLY GIVE THEM MERCURY POISONING AND CAUSE SYMPTOMS OF (ADD, ADHD, AUTISM,MULTPLE SCERLOSIS, DEPRESSION, SUISIDE, ALSIMERS,THYROID PROBLEMS, AND MANY OTHERS) PLEASE INFORM YOURSELF NOW. A WEB SITE THAT I FOUND VERY USEFUL WAS WWW.DAMS.COM THAT IS SHORT FOR (DENTAL AMALGAM MERCURY SOLUTIONS) ALSO YOU CAN CALL THEM AT(1-651-644-4572). THE BIBLE SAYS THAT "GODS PEOPLE PARRISH FROM LACK OF KNOWLEDGE" PLEASE INFORM YOURSELF SO THAT WAY YOU CAN PROTECT YOURSELF- I BEG YOU !!!! MAY GOD LEAD YOU TO BETTER HEALTH AND THE INFORMATION YOU NEED... SINCERELY, DARLENE (DEDICATED TO BETTER HEALTH FOR ALL)

re: Fibromyalgia, Lyrica, and the New York Times

linarose — Tue, 20 Jan 2009 09:03:45 GMT

Patty D--you say: There is a LOT of evidence that fibromyalgia and chronic fatigue are related and that one of the triggers is a viral infection. It is true! And it is also true that there are many different triggers, it is very important to find out what exactly triggered it when you feel worse.

It is a horrible condition. EFT may be helpfull for some but it can make you feel worse.

I am coaching people with fybromialgia.

Here is a list of the things that help for almost every person with fybromialgia (no 2 people with fybromialgia are the same)

-evening primrose oil

-pycnogenol (the real french maritime pinebark extract- with trademark)

-phosphatidylserine

these will get the "fog" out of your brain

-oreganol

-chloroXygen

helps with candida & brings in more oxygen

-maca

helps to bring you in balance

Sleep is very important!

Diet is very important! no gluten, no diary, no sugar for at least 3 months

Some therapy to help you empty your mind (it is overflowing)

re: Fibromyalgia, Lyrica, and the New York Times

Curlytop — Tue, 13 Jan 2009 21:15:55 GMT

Okay, here goes another try-they keep taking my comments down. Hmmmmmm-afraid of TRUTH or afraid of competition Doc?

I've had fibromyalgia as long as I can remember. Probably since birth. I had an idyllic childhood, and am 25 years in to a happy marriage. What emotional baggage? We all have old issues, but blaming fibro on emotional baggage is the same as saying it's all in your head!!! This is a real illness with a real cause. Remember stomach-ulcers? For years blamed on stress. Now we know it's a bacterial infection. The docs who discovered this were not believed for well over a year; now it's standard, accepted medical fact.

Anyone with fibromyalgia seeking real,experienced, science-based relief may want to check in to www.fibromyalgiatreatment.com

and read the book; "What Your Doctor May Not Tell You About Fibromyalgia" by Dr. R Paul St Amand.

Ignoring it, "counseling" it, hypnotizing it, medicating it, detoxing it away; none of these things work Because it's a real illness with a real cause. As someone who no longer suffers significant fibromyalgia symptoms (and I also almost killed myself over the pain!) I beg you to check out the above referenced website and book.

They are half-way through a 3 year genetic study. The results so far are verrrrry promising!

Remember; if the drug co's think there is no money in a cure or treatment, they bad-mouth it and absolutely will NOT spend $$ to research it. This genetic study is patient-funded! The treatment works!

re: Fibromyalgia, Lyrica, and the New York Times

Ladyhawke — Tue, 13 Jan 2009 13:48:53 GMT

I have fibromyalgia. I don't particularly care if you call it a syndrome or a disease, just don't discount the reality of its existence. Until you've walked a mile in my shoes, don't tell me that the pain and fatigue that keeps me from doing the things I want to do does not exist!!!!

I get regular chiropractic care. I love my chiropractors. They completely resolved my asthma!! And I am sure that it is helping with the fibro, though we haven't eliminated it yet. The most helpful thing I have found so far is the removal of High Fructose corn syrup. After about 3 months, my pain decreased dramatically! In spite of what the corn consortium says, it is not the same as sugar! I removed it completely from my diet and used only raw sugar, and that sparingly. And it made a huge difference. Thankfully, with the public awareness of how bad this additive (or should I say drug??) is for you, more and more companies are taking notice and removing it from their products.

Ladyhawke

re: Fibromyalgia, Lyrica, and the New York Times

clztzzz — Thu, 20 Nov 2008 15:45:41 GMT

I am on Lyrica and it hasn't changed anything. Has anyone tried the Guaifenesin treatment that Dr. St.Amand writes about?

re: Fibromyalgia, Lyrica, and the New York Times

anjelika8702 — Wed, 23 Jul 2008 08:56:06 GMT

i took lyrica before all the hype about it. i had no positive effects at all. i do think that if i had heard about lyrica being an answer for the fibromyalgia, i would have been really let down.

re: Fibromyalgia, Lyrica, and the New York Times

HAHC — Fri, 16 May 2008 14:02:48 GMT

I suffered with Fibromyalgia from 1999 until 2005 when I made a conscious decision to either heal myself or suicide......I am still here! I took control of my own health! I located an alternative doctor who provided alternative therapies. I was so overwhelmed by my profound healing I went to school to study alternative health. I now have my own small practice as a Holistic Health Practitioner and help others who are suffering with chronic illnesses. Drugs are NOT the answer! Drugs are contributing to the underlying issue. Taking control of your health is a journey that requires dedication. You have to be willing to change your lifestyle and mindset. Never give up HOPE and remember to ALWAYS BE KIND TO YOURSELF!! Blessings! PAM

re: Fibromyalgia, Lyrica, and the New York Times

Purple Passion 18 28 — Mon, 25 Feb 2008 00:48:59 GMT

I have fibromyalgia and I was diagnosed in 2000.However the doctor I had that discovered it shortly after retired. I decided to take on the NEW right out of college doc thinking that he will have the best options hopefully with me having fibromyalgia. Well accoding to him he did. Put me on alot of drugs and basically tried to get me going with SSDI. Well for 5 years he didnt tell me about other options to help me such as pain clinic, internal medicine etc. Well needless to say I was pissed. I went and changed doctors. Went old school. My new doc we tried everything other than narcotics due to me having past alcohol and drug issues. Although I had to go back to using a narcotic patch that I change every 3 days, I went from the 5 years of not working and being in bed doing nothing, not being involved with my family, being sick and sore alot, in the hospital alot, to now I am regaining everything back and having my family again, getting a life together. I an getting my auto detailing business restarted again full time. As far as the Lyrica goes, my doc had tried that with me for 3 and a half weeks and it actually almost put me into comiting suicide seriously. Fortunately I had noticed what it was that caused me to change and I stopped it. But fibromyalgia is real but its how you want to deal with life and what you want out of it. I was taking about 28 pills a day including depression pills too gained about 100 pounds felt and looked bad so I started all over and dropped some pills and planned to renew my life. I got control of me. Best thing I ever did. My mother has the same thing and she cries about it and takes all the meds and cannot deal with any pain. There is way too many things in life to live for. So I want to be out there catching those fish with my grandchildren and if I am on SSDI I sure cannot be sitting in my boat collecting a check from the government and fishing too. If I can fish, I can work! I love life! It is a gift given to me. Thanks! Dave

re: Fibromyalgia, Lyrica, and the New York Times

Bumble — Thu, 21 Feb 2008 16:02:37 GMT

This article is so upsetting. Fibromyaligia is REAL. Did it ever occur to the medical establishment the reason we have a lower tolerance for pain is because we are in constant pain and the smallest addition to that pain is often overwhelming. As a point of interest I have extremely debilitating fibromyalgia. I also have vitialigo, and an under active thryoid. When you see my white bloched face and body I am sure you will attribute that to my emoitional issues as well. It is disgusting to see the medical community dismiss a disease because they do not know how to handle it. I would also like to comment that though it is extremely difficult forme to even get dresses let alone perform most daily functions most take for granted. I am 53 I have a more than full-time sales position which involves driving throughout MIchigan and working with heavy complicated equipment. I also own and operate a full time retail bead store. Do I hurt? YES!! Am I often exhausted? Yes But I know I do not look like, or move like most people my age. I also know I love my life and I am a very happy person after years of growth adjustment and professional theraphy I have no deep seated undiscovered emotional issues. I have a painful but surviable disorder. I also know that many people who suffer from vitilogo to the visible extent I do many times will not even leave the house let alone make public presentations. I refuse to be pushed aside or dismissed. I hurt, I hurt everyday but I muscle through. I will not be treated as though I am lazy, or emotionally maladjusted.

re: Fibromyalgia, Lyrica, and the New York Times

manystreams43 — Thu, 21 Feb 2008 00:48:53 GMT

Why don't all women have fibromyalgia? Most all women have emotional issues.

re: Fibromyalgia, Lyrica, and the New York Times

feathermelightlyyahoo — Tue, 19 Feb 2008 02:22:29 GMT

Please tell me why every female doesn't have fibromyalgia. You say it is caused by emotional problems. What female does not have emotional problems?

re: Fibromyalgia, Lyrica, and the New York Times

Sue W — Sat, 16 Feb 2008 05:38:46 GMT

I have read many articles on fibromyalgia and I find that nothing makes any sense. Diet doew help some but the flare ups are frequent and substantial. I have a sister with this that developed this after battling a shoulder injury at work that he company wouldn't allow enough time off from work to let it heatl properly. I have a friend with this that developed it after contracting limes desease. She ended up in a wheel-chair. MNy oldest daughterf 32 has this desease after a car accident. And my youngest daughter, 19 , has it the worst after an accident at a water park and months of abuse by a well meaning chiropractor. What I see that all these have in common is not emotionsl , but rather a physical injury. And in particular a injury that isn't allowed to heal properly or given time to let the body do what it is designed to do. It is designed to heal it self. Right now I have a shoulder injury from work. and the first thing the doctor and wormans comp did was send me to therapy the day after it happened. needless to say it has only gotten worse and hasn[t healed at all. now its surgery. funny how doctors are always trying to do what is best for us and yet all theese things like fibromyalgia, tendenitis,ect are running rampant. I think if we focus on somnehting mor than the money involved in everything maybe we could get somewhere.