re: Be Careful of Lupron for Endometriosis, It Could Be the Kiss of Death

miserablemom — Wed, 14 Jan 2009 04:29:31 GMT

I would give anything to have seen all of this information before I allowed the IVF Clinic to prescribe Lupron to me. My son is now 6, but for the past 2 years, I have been living in horrific, un-diagnosed left rib pain, & Back pain. I have osteoprosis in my spine, osteopenia in my hips, constant brain fog and memory loss. I am just beginning to look into the possibility that Lupron has caused my agony. I am struggling to keep my home life in tact. It's a massive struggle every day to please my kids and husband. The fear of losing them is unbearable. I was told nothing about these side effects, my husband and I wanted a baby, and they took advantage of that. I am discusted to know that the very same drug that gave us our child, may be the same thing that takes me away from him. I am 31 years old.

re: Be Careful of Lupron for Endometriosis, It Could Be the Kiss of Death

sebastiana — Fri, 09 May 2008 23:27:31 GMT

Yes, Dr. Mercola, Lupron is the kiss of death. It has ruined my whole life. In 1989, I was part of a trial in N.Y.C. for a monthly shot of lupron to keep endometriosis in check. These injections contained much larger doses of lupron than ordinarily used. After the second injection, the back of my head and neck swelled up and felt like a brick. I went to the ER where they diagnosed partial cerebral edema. After I came off lupron, my life was never the same. The muscles in my neck, shoulders and back became severely contracted and have never released to this day. I went to an internist, recommended by my gynecologist, who told me he'd seen this happen to other lupron patients because the drug works on the hypothalamus, and that after some physical therapy it would disappear. From there, I attended physical therapy for one year, but it never went away. In 1996, my doctors thought my pain was being caused by bulging cervical disks, and I ended up having two disks removed and a fusion. After the surgery, the original pain remained the same. In 1998, I was diagnosed with Fibromyalgia, because the pain began to wind up and expand to other parts of my upper body. Other symptoms that appeared are: intractable insomnia, chronic fatigue, flu-like symptoms, excessive sweating, and brain fog. I am now on the Guaifenesin Protocol for fibromyalgia, but I don't see it working in my original pain area at all. In 2003, owing to severe sleep deprivation and excruciating chronic pain, I was forced to resign from a tenured associate professorship at ASU. At the same time, I lost my marriage, my home, my car and my financial and emotional well-being. Once an award-winning scholar and gifted teacher, I am now hanging around the house using all my time trying to keep my symptoms under some kind of bearable control. I've now been out of work for 4 years. I believe that all of this began with lupron. So, yes, it is the kiss of death. Any advice?