Multiple Sclerosis and Epstein-Barr Virus

re: Multiple Sclerosis and Epstein-Barr Virus

jmzucofskiaol — Fri, 19 Jun 2009 05:19:41 GMT

It's interesting that my Dad who died at 39 after having MS symptoms for 8 years also had had rickets as a child and gums that were so poor that he was loosing his teeth. All of these are signs of Vitamin D deficiency. Now I also have been told I have low vitamin D by my doc and am on supplements.

re: Multiple Sclerosis and Epstein-Barr Virus

conniejean — Fri, 22 May 2009 13:06:33 GMT

I am excited about Alpha Lipoic Acid for MS symptoms. While my son still remains undiagnosed, it is his T-Cells that are affected. He receives IVIG on a monthly basis (human donor T-Cells). I would love to get him off that stuff....there are still traces of vaccination in the donor T-Cells which makes me nervous. If we can replace the IVIG ($5,000/dose), and replace it with a safer and less expensive alternative, I would be thrilled. Our insurance will only cover six months of IVIG, so we will be in a "wait and see" pattern until his next supposed relaps. I am hoping that ALA will help him enough that his T-Cells will starting functioning properly on their own. I would love to get a referral from someone that knows of an excellent ND in the Minneapolis area. We work with an ND in FL, but would like to have someone physically examine Christian. My email is: cjherzog28@msn.com. I have yet to find anyone here that I feel makes a difference.

re: Multiple Sclerosis and Epstein-Barr Virus

conniejean — Fri, 22 May 2009 12:58:08 GMT

When my son was four yrs. old he developed EBV - unusual for such young kid. During this time, he also complained of leg pain, especially during the night. Four years later he started complaining about tingling in his hands and "shooting pain" through his fingers on his left hand - two days later he woke up and had lost most of his muscle strength on his left side. An MRI revealed over 20 lesions on his brain and three on his spine. He was treated with high doses of IV steroids. After six weeks in the hospital, we finally took him home in a wheelchair. We tried weaning him off the steroids, but he would always relaps. It wasn't until we found a ND that was willing to teach us how to detoxify Christian, we finally weaned him off. That was May 2006. Fast foward to today..... Christian has had clean MRI's for a year and a half. All lesions are gone, he's walking and is normal. He had mild relaps in January 2009. MRI did not reveal any new lesions. Christian continues to be on alternative medicine. Doctors cannot agree if he has MS - he is still undiagnosed. In March 2009, he started feeling numbness in his fingertips, over a weeks time the numbness covered 80% of his body. MRI was negative. We had blood work done and waited for results. During the waiting period, I prayed that God would guide me to the answer to his numbness. I woke up one morning and "Vitamin D" popped into my head. After a few minutes of research, it was clear that Christian was propably Vitamin D deficient. I called the clinic and asked his doctor to add a Vit. D level test. He said it wouldn't hurt. The test came back 18ng/ml. He was definitely deficient. I was upset that doctors didn't know this. I put him on 2,000 IU of Vitamin D3 liquid. Within two weeks he was back to normal. I am now told that the neurology clinic has been testing patients "for the past couple months." If that's the case, why did I have to ask for the test? We have to be our own health advocate.